Information sharing and support groups

English

Yahoo FMF support group

Familial Mediterranean Fever and Associated Periodic Fever Syndromes

French

l'AFFMF (Association Française de la Fièvre Méditerranéenne Familiale)
Courriel: affmf@free.fr

Le forum AFFMF (Association Française de la Fièvre Méditerranéenne Familiale) sur Yahoo France

Maladie Périodique - Forum Santé sur Futura-Sciences.com

Spanish

Asociación de Enfermos de Fiebre Mediterránea Familiar de España
Courriel: fiebre_mediterranea_familiar@yahoo.es

Grupo Yahoo España - Fiebre Mediterránea Familiar

Italian

Portale Malattie Rare e Febbre Mediterranea Familiare

Gruppo Italiano FMF – Febbre Mediterranea Familiare
Courriel: gruppo_italiano_fmf@yahoogroups.com

Febbri Periodiche e FMF Forum

Associazione Italiana Febbri Periodiche

Centro Febbri Periodiche

Turkish

Ailevi Akdeniz Atesi

Dutch

Netherlands FMF community

Other resources for patients

Article: "An Elusive Agony", by Lisa Saunders, M.D., the New York Times, Sept. 2007

National Institute of Health – Office of Rare Diseases – Patient resources

www.FMFcommunity.org - Familial Mediterranean Fever and associated Periodic Fever Syndromes - resources and support

Madison�s Foundation: Rare pediatric disease database and support network for parents

Jewish Genetic Diseases

Genetic Interest Group (has extensive listing of internet links for information about genetic disorders and care groups)