Information sharing and support groups

English

The Children's Inn at NIH

Yahoo FMF support group

Familial Mediterranean Fever and Associated Periodic Fever Syndromes

French

l'AFFMF (Association Française de la Fièvre Méditerranéenne Familiale)
Courriel: affmf@free.fr

Le forum AFFMF (Association Française de la Fièvre Méditerranéenne Familiale) sur Yahoo France

Maladie Périodique - Forum Santé sur Futura-Sciences.com

Spanish

Asociación de Enfermos de Fiebre Mediterránea Familiar de España
Courriel: fiebre_mediterranea_familiar@yahoo.es

Grupo Yahoo España - Fiebre Mediterránea Familiar

Italian

Portale Malattie Rare e Febbre Mediterranea Familiare

Gruppo Italiano FMF – Febbre Mediterranea Familiare
Courriel: gruppo_italiano_fmf@yahoogroups.com

Febbri Periodiche e FMF Forum

Associazione Italiana Febbri Periodiche

Centro Febbri Periodiche

Turkish

Ailevi Akdeniz Atesi

Dutch

Netherlands FMF community

Other resources for patients

Rare Disease Communities - The Voice of Rare Disease Patients in Europe - FMF Community Forum

Article: "An Elusive Agony", by Lisa Saunders, M.D., the New York Times, Sept. 2007

National Institute of Health – Office of Rare Diseases – Patient resources

www.FMFcommunity.org - Familial Mediterranean Fever and associated Periodic Fever Syndromes - resources and support

Madisons Foundation: Rare pediatric disease database and support network for parents

Jewish Genetic Diseases

Genetic Interest Group (has extensive listing of internet links for information about genetic disorders and care groups)